"Today is another milestone in our efforts to honor Kyler and all those who suffer, both directly and indirectly, from the devastation that DIPG causes families," said Coley.
DIPG is an aggressive, malignant brain tumor found at the base of the brain stem, affecting approximately 200 to 400 children in the U.S each year. It is the second most common malignant brain tumor and is the leading cause of childhood death due to brain tumors. The average prognosis of those diagnosed is 9 months. Symptoms include double vision, inability to close the eyelids completely, drooping of one side of the face as well as difficulty chewing and swallowing.